Too Much Information

You don’t hear that too much anymore, do you? TMI- too much information. Maybe it’s due to the rise of social media, where we can read in an instant about what our friends had for breakfast or see the latest picture of their cat.

Blogging has become like that too. Everybody has one. A couple of weeks ago I was hanging out with a friend who is a literary agent. He said, “Five years ago, if you had a blog that was considered a big deal- a built-in platform with a following. Now, you’re expected to have a blog- so you need to work that much harder to stand out.”

That’s certainly one problem. But another relates to what I wrote about last time– too many blogs means too many websites to visit to read.

The long weekend afforded me time to go through my blog subscriptions. (And the fact that Google Reader is going away added extra motivation.) I deleted many that haven’t been updated in a year, and deleted others that I just don’t get around to reading. Even then, when all was said and done, I am still subscribed to 88 blogs. I don’t have a traditional “blog roll” on this site because it would just be too long. (And yes, of those 88 there are probably only a dozen that I visit regularly; but still.)

Another problem with this, besides being a complete time-suck and distraction, is that I recognize I cannot cover every subject, nor do I know everything (shocker, I know) so I read a lot with the intention of sharing a lot with my readers. That’s why I have my Facebook page (/shameless plug), to share not just my posts, but what others are writing about on subjects near and dear to my heart and my convictions.

But I often wonder, with hundreds of blogs out there covering the same ground as I am, if I’m just another voice in the din? On the other hand, as I was going through my blog subscriptions I was surprised how many blogs folded up shop or only submitted a couple of posts before running out of steam. This is hard and time-consuming and it’s hard to believe I’ve been doing this for nearly seven years. So why do I do it? Because I don’t believe there is such a thing as too much information. Sure, there may be not enough time or not enough resources, but when it comes to an infinite God it is impossible to write too much. As a wrote in a post a couple of years ago:

Jesus did many other things as well. If every one of them were written down, I suppose that even the whole [Internet] would not have room for the [blogs] that would be written.” (John 21:25)

Flashback Friday: Global Reach

Reposted from last May and still appropriate for “Missions Month”. The writers’ conference I referenced isn’t until October this year, so if you’re interested you can follow that link below.

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Last weekend I attended the Antelope Valley Christian Writers’ Conference. This was my fourth or fifth time attending, and while the pointers and tips are helpful, the fruit in attending is really found in the fellowship and encouragement to keep plugging away. Do I have a manuscript that I’m shopping? No. Am I taking baby-steps by submitting work to magazines and anthologies? No. Am I actively building my platform through social media? No, not really. So it would be easy to look at my “progress” and be discouraged and maybe even quit. So I need the swift kick in the butt at a forum such as this to continue on.

Meanwhile, last night my small group study met to discuss the fourth chapter of David Platt’s Radical, titled “The Great Why of God”. David has many versions of this succinct summary of God’s purpose for our lives: God’s extravagant grace is poured out on us so that his extravagant glory may be known in every nation. Put another way, God blesses us so that we can use those blessings to bring him Glory here, there, and everywhere (Acts 1:8). Or, God saves us to make his salvation known to the whole world. (Psalm 67)

Coincidentally (there are no coincidences with the Holy Spirit!) one of the keynotes last weekend was titled, “Until the Whole World Hears” (which tempted me to re-post this entry from last year rather than taking the time to churn out a new post this morning). The main point of this lesson was that through writing, God has given me the opportunity to reach the entire world for his glory. That sounds lofty, absent a bestseller. But through the Internet and social media, this is really true. Last night I used the example of my Twitter account. I am followed, or I follow, at least one person from every continent on this globe sans Antarctica. In my stream last night I had updates from literally all over the world. That may not be that big of a deal, since how many Twitter followers actually “know” me, but the truth is that through Twitter I have had conversations with an Elder in London, a missionary in Thailand, and a campus ministry in Indonesia. I also shared about when one of my friends got married a couple of weeks ago to a woman he met on the mission field, his wedding ceremony was Skyped all over the world. Another of my good friends here Skypes every Sunday service to his mother in Argentina.

Now I don’t know if this blog will be read by anyone outside of the town I live in or beyond my immediate family, but if I don’t write then no one will read it. In this world-wide web, I may be a whisper in a din or one among a multitude of bloggers, but I still have worldwide impact through the power of my words. And God only knows where that will lead me. One of my good blogger-buddies, Duane Scott, simply by sponsoring a child, will be travelling to Zimbabwe to write about his experience and the needs of the children there. Another of my friends, Jason Stasyszen, used his blog platform to raise money to adopt a child from Japan. And coincidentally (what did I say about the Holy Spirit?) one of the contacts I made this weekend, a pastor in Chicago named Dan Darling, is working on a book with another blogger buddy, Dan King. And what was Dan’s first book? The Unlikely Missionary.

Until the whole world hears. And it is a small world, after all.

Bibliophile or Bible-phile?

I need help. The first step to recovery is admitting you have a problem. I admit, I’m a book junkie. I remember after I became a Christian in college I would spend evenings devouring my Bible and afternoons hidden away in the bookstore browsing titles. Homework, what homework? Besides the negative consequences of slipping grades, the long term effects have also had their impact- overflowing bookshelves pushing away any open space, a cluttered garage filled with boxes of books, stacks of titles on the kitchen table that I insist on leaving out because I’m going to read them eventually, really I am.



Photo credit: Soilse

My latest drug of choice? Free e-books on Kindle. My Kindle App has 37 titles, only four of them read so far. iBooks has another twelve books, or free previews of books. And I just got done ordering three more titles from Amazon. One of those, God’s Favorite Place on Earth by Frank Viola, I got mainly because of the 25 free resources (a few were audio, so those didn’t add to my book count) offered the first week of its release. (I admit, I would’ve gotten this book anyway as I really like Viola and the premise of the book is very intriguing, but the free resources compelled me to buy it when I did. And I wasn’t alone, so many addicts like myself were sucked in by his offer that Amazon actually ran out of copies to ship!)
And then there are the dozen or so unread titles that I’ve purchased on impulse, received to review on my blog, or have been given to me by my enabler friends who know I like to read.

But there’s been another, more serious, consequence: I don’t study my Bible as thoroughly as I used to. I’ve become a bibliophile instead of a Bible-phile. I can tell when it gets bad- I’m irritable, I get writer’s block, I lose motivation, I become critical and I stop praying. I recognize when I’m on a bender. I know my books can’t satisfy my soul the way the Bible can, and drawing close to Him through His Word refreshes my prayer life. Yet I keep going back to my quick fix.

I’m trying to cut back. I can’t quit cold-turkey, although I probably should. I declined the current book study I usually do with some of my blogger buddies. I put back on the shelf many of the books that were stacked up in my kitchen that I was planning to read. I’ve boxed others away. I even got rid of a few a while back.

The thing is, I need focus. I can’t read a half-dozen titles at once. I need to learn how to balance reading for recreation, for education, for edification and for devotion. I have too much on my plate that depends on me getting cleaned up and sober.

So I am focusing on a single book for edification, with two others on the wings for education. I’m cracking open my Bible more (but still not enough) for devotion. And I’d like to think I’m being more productive in my writing.

But what’s that, someone on Facebook posted another Kindle deal? I’ll be right back…

How do you balance your recreational reading with devotional Bible study?
Are you able to read more than one title at a time?

Fishing for a Calling

I don’t know about you, but I always get hung up on Jesus’ call to follow him and be a “fisher of men” (Mark 1:17). I am by no means an evangelistic superstar. I struggle to be out of myself reaching out to strangers and have a hard time raising the topic in the relationships I have. I always seem to be looking for a reason to let someone else do it or rationalize my personal ministry as being in some way different. At the same time I have the underlying conviction that my ministry is where I am- that the Kingdom of God, expressed through living a Christ-like life, loving and serving, and sharing the Gospel, is not limited to formal titles, organizational structure, or calendar events. In other words, we shouldn’t wait for a formal church program to appear on our calendar before we minister to others.

(As an aside, when I was at the Pepperdine Bible Lectures a couple of weeks ago I was talking to a pastor and he asked if I was in ministry. I told him no, but I did lead a small group and he answered “well that’s ministry.” And he’s right, though I often forget that.)

Despite this conviction, I struggle with identifying myself as a “fisherman”. In Jesus’ day the young men that he would eventually call to follow him fished on the Sea of Galilee by casting nets over the side of their boats. Me, I drop a worm in the creek and wait all day for a nibble.

But I read this yesterday from Jamie Arpin-Ricci in his book The Cost of Community: When Jesus called his first followers, he “encounter[ed] them in the midst of their daily work, [calling] them to follow him and employ their skills for God’s kingdom.” (pg 27) He called fishermen to be fishers of men. Of course I knew this and understood the intentional play on words, but I never extrapolated that to my own life. I have always read this as I am called to be a fisher of men regardless of my daily work.

But if I take Jesus as meeting me where I am (and Paul talks about continuing where we are when we are called) then Jesus isn’t calling me to be a fisher of men and he’s not calling you to be one either.

That may be sacrilegious to hear, but it is true. Jesus isn’t calling me to be a fisher of men because I’m not a fisherman. If you are a teacher, Jesus is calling you to be a teacher of the Gospel. If you work with your hands, Jesus is calling you to build his Kingdom. If you are in the service industry, Jesus is calling you to serve his children. (This has shades of what Paul writes in Romans 12, “If you teach… if you serve…”)

Jesus is calling you to a metaphor for his Kingdom work that is specific to you.

So where does that leave me? I’m an engineer by trade so am I engineering God’s Kingdom? I cannot say I am a ‘designer’ as I cannot improve God’s perfect design. I can’t say I am a ‘problem solver’ for it is too easy to turn that into an excuse for inaction. I guess I could call myself a ‘developer of disciples’. That would fit with what I do on this blog, in my small group, and in my limited free time.

Arpin-Ricci continues, “Just as he called his disciples amid their workplaces, so too he expects that we respond to his calling as our first priority. It is not enough to merely make room for Jesus in our lives, not enough to be volunteers in his mission when we have the time or the inclination. Rather he calls us to follow him, to utilize all of our strengths, gifts and resources for our truest vocation – ambassadors of his emerging kingdom.”

Yesterday Grayson Pope urged not to let our “wiring” keep us from our calling. Could it be that what has been holding me back was simply semantics?

Dear X, My Name Is

Last time I talked about our inner voices that Satan uses to deceive and discourage us. The beautiful thing is that those voices do not define who we are (although sometimes we are tempted to allow that to happen).

Here are a couple of songs to help make that point. My negative self-talk, my failures, my sinful nature do not own me because I am a child of the One True King.

(Songs by Disciple and Matthew West)

Tiny Voices

Those voices in your head- you know them, you hear them frequently. No, you don’t necessarily see an angel on one shoulder and a devil on the other, but the voices are still there. We’ve come up with a nice way of describing these voices- “self-talk”

I’ve heard that up to 75% of our self-talk is negative. “You can’t do that.” “You look ugly in that shirt.” “That person over there is better, smarter and more attractive than you.” And on, and on.

 

Do these words sound familiar? Of course this negative self-talk are all lies. Satan is so-named because he is the “deceiver” and “accuser“. When Jesus was tempted in the desert, Satan wasn’t there throwing rocks at him, he was trying to get Jesus to doubt who he was. “If you are the son of God…” When Jesus told Peter to, “Get behind me Satan!” The devil himself wasn’t standing in Peter’s place, but he was influencing Peter’s self-talk.

While a lot of our self-talk is normal, even the negative- we are our own worst critics after all- some of it is explicitly evil meant to drive a wedge between you and God and rob you of the fruits of the Holy Spirit, namely joy, peace, patience and self-control.

In counseling it is sometimes helpful to give these voices names. “Bubba” the bully who puts you down. “Suzie” the little girl who is scared of who might come into the bedroom at night. Sometimes trauma can be so bad that these voices, these personalities, can create fissures in the subconscious leading to disassociation. Other times, they are there just to bring you down. Once identified, it can be helpful to have conversations with these voices- to let them know you are in charge and that you don’t have to listen to them anymore. (But not always- it is very important to do this under the guidance of a professional, especially in cases of disassociation or when there has been significant trauma.)

But no matter how serious or real they seem to be, they are all lies.

A friend of mine recently went on a business trip for a high-profile meeting. One of his voices was telling him that he was going to do something to screw it up and that he didn’t deserve the platform he had. But he effectively told this voice to shut up. He told his voice, “Look, you’re not going to have a good time on this trip and I’m not going to have a good time if you go on this trip. So save us both the trouble and stay here.” He took a cue from Jesus and told him “you do not have in mind the things of God” And it hit him, this voice was Satan. It always was and it always will be. And it didn’t have to control him anymore.

I remember once reading the book of Job and being struck with the realization that Satan had to ask permission from God to torment him. I recalled Jesus saying to Peter, “Simon, Simon, behold, Satan has demanded permission to sift you like wheat; but I have prayed for you.” (Luke 22:31-32a, NASB) And of course there is the promise found throughout the New Testament of being set free from the slavery of sin.

This self-talk, you don’t have to listen to it. While some voices are stronger, some trauma too real to just “pray away”, many of the voices in our head are nothing more than Satan trying to deceive us and those voices can be overcome with prayer. Recalling Job and Jesus’ words, I’ve found this prayer, or ones like it, helpful:

“Lord God, you are all-knowing and all-powerful. Nothing happens outside of your will. You are faithful and promise that you will not allow us to be tempted more than we can bear. [1 Corinthians 10:13]. Please, Lord, do not give permission to Satan to tempt or deceive me with his lies. Close my ears to his accusations and give me hope and confidence in the blood of your son, Jesus to overcome all my doubts and fears. In the authority of His Name I pray, Amen.”

What are some of the negative voices you hear? Have you given those voices a name?

What’s a Parent to Do?

So I’ve been spending my last several posts on the issue of mental health, getting personal with my “not autistic enough” son. In these posts, there’s been a lot of description, but not a lot of application. So I’m going to share my notes from a conference last year from a class called Parenting Children With Special Needs.

First, it is important to have the conviction that God does not make mistakes.

“As he went along, he saw a man blind from birth. His disciples asked him, ‘Rabbi, who sinned, this man or his parents, that he was born blind?’
‘Neither this man nor his parents sinned,’ said Jesus, but this happened so that the works of God might be displayed in him. (John 9:1-3)

Whatever you are going through, whatever your children are going through, it is all in order to display the work of God.

If you struggle to believe that (and who doesn’t at times?), remember that God can relate to us as parents.

Can a mother forget the baby at her breast
and have no compassion on the child she has borne?
Though she may forget,
I will not forget you!
(Isaiah 49:15)

Next we cannot blame ourselves. You did not do something wrong to cause this, nor do you deserve it for something

He does not treat us as our sins deserve
or repay us according to our iniquities.
For as high as the heavens are above the earth,
so great is his love for those who fear him;
as far as the east is from the west,
so far has he removed our transgressions from us.
(Psalm 103:10-12)

If you’re a parent reading this, have faith that God chose you to be the parent to your child. He knows your inmost thoughts, he has your child’s days already written (Ps 139), and he picked you out of all other options to be your son or daughter’s parent. Plus, your child is no accident, he or she is not a mistake, your son or daughter was fearfully and wonderfully made (v 13-16)

Most of all, love, love, love. Love your child. Love the teachers or other parents who may be critical or judgemental, love those who are patient in teaching, serving and befriending your children.

“Above all, love each other deeply, because love covers over a multitude of sins.” (1 Peter 4:8)

For those of you who have reached out to me over Twitter or Facebook, I will continue to keep you in my prayers. Please also pray for me and my family.

Not Crying on Sundays

I have a confession to make.

Not that long ago, I went through a period where I didn’t want to go to church.

Yeah, I know. Me, you, everybody; this isn’t much of a confession. But this wasn’t because I wanted to sleep in or catch the early NFL game. No, I didn’t want to go to church because most of the time I would come home crying.

This is our usual Sunday morning routine. Get up and get ready for church. Eat breakfast, making sure that our son had a high-protein, low sugar balanced meal. Sometimes we’d pray in the car on the way there. If it wasn’t out loud, I would always pray silently before dropping off my son in class. We would take him to his classroom, he would grip tightly to our hand or our leg, and we would have to pry him away to get him to go in. He’d try and escape back out the door, sometimes stopping to sit just outside in the hallway. Other times, he would find a chair off by itself and plant himself there, pull his knees up and bury his face safely behind them.

About a half-hour in to our church service, a volunteer would come and tap me on my shoulder to tell me my son was having problems. I’d leave worship, sit him down and try to talk to him one-on-one reminding him of the importance of following directions and not being disruptive to the other students. Sometimes I’d let him go back to class. Other times, if it was really bad, I’d keep him out with me. I wouldn’t dare take him in to the church service. So we would sit. Alone. Waiting for church to be over. I’d feel every glance and glare from people walking by. I’d smile politely but I can read their eyes: “what’s his problem?”

Let me for a moment define “really bad” which unfortunately was much of the time. My son would crawl under the table and kick the mechanism that folds up the legs. It made a neat sound, rattling against the metal. It fascinated him. Other times he would start tearing up his paper into little pieces, just to see how small he could make a rip. Sometimes he’d wonder what those pieces of paper would taste like, so he would proceed to eat as many as he could before a teacher could intervene. He wouldn’t join in circle time when everyone would be singing together. He wouldn’t sit still in his chair. A teacher could only put up with this for so long before they would have to call for reinforcements- me.

So while sitting outside of class and outside of worship, my son and I would have deep talks. Sometimes I’d take him outside just so he could run around in circles to burn off all of his extra energy. Sometimes we’d talk about God and Jesus. Most of the time we’d talk about what made my son tick.

But by the time church was over I would be near tears, crawling out of my skin. “Why didn’t we take two cars?” I’d ask myself. The silent, invisible wounds from every comment and sideways look were killing me.

Here are some comments we’d hear. Maybe you’ve heard them, or some variation, yourself:

  • Boys will be boys. He’ll grow out of it.
  • If you kids are going to be disciples of Jesus, they need to be more outgoing. You need to teach them to not be so shy.
  • You need to do something about your son, there’s no reason at his age he shouldn’t be able to sit still.
  • No, there’s nothing wrong with him, you just need to teach him self-control.
  • I don’t think you’re disciplining him enough at home.
  • Remember, spare the rod and spoil the child.

So I’d leave church wondering if we were wrong about our son. Maybe we just needed to spank harder, discipline him more severely. At best I was paranoid about his condition, at worst I was a failure as a parent.

Sound familiar?

But there were others in our church who watched this from a distance. They recognized it. They felt our pain. And soon we’d have parents giving tips of what worked for their children and share the struggles they have had. One mom, a parent of two teenagers with autism, said that she recognized it as soon as she met our son. Affirmation! Relief.

Some teachers also understood. One makes a point to assign my son to be a helper- keeping him busy and out of his chair. Others know that when he’s sitting off by himself, that they just need to leave him be until he is ready and acclimated to his new environment.

And we changed our habits too. Yes, a high protein and low sugar breakfast is still a must. But now we also give him coffee every morning. While that may sound strange, caffeine is a natural stimulant that has the same effect (in principle) as ADHD drugs. Explaining this to one parent changed his life- he noticed that when he’d drink tea or coffee he wouldn’t feel as much anxiety and could focus better. He is know on ADHD medication and you’d think he was a completely different person.

This isn’t just my son I’m talking about. Teaching class a few weeks ago, the lesson was on Palm Sunday. The kids were restless so I suggested we go outside and have a parade for Jesus. We marched around our church building singing as loud as we could, shouting “Hosanna in the Highest!” But there were two boys who dragged along behind, covering their ears. Even outside in the open, this was too much stimulation for them. My son hung back with them. He understood.

Chances are, there are children at your church, in your Sunday-school class, friends with your children that have either ADHD, autism or maybe even both. It might be your child and you don’t know what to do. It used to be said that one in 88 children would have autism. That rate has recently been raised to one in 50. More than one in 10 have ADHD with boys twice as likely as girls to be diagnosed, a percentage that has increased 70% in the last five years. A 2009 study suggests that one in six children have sensory integration issues that impede their daily functioning.

Let me repeat:

  • 1 in 50 children have some form of autism.
  • More than 1 in 10 children have been diagnosed with ADHD.
  • 1 in 6 suffer from sensory integration issues.

These are children at your church, in your neighborhood, maybe even your home.

As I continue to say in this series of posts, you are not alone in dealing with this. Talk about it. Share what works and doesn’t work. Don’t be afraid of the label and have your child checked out.

For the church, one of the most important things to do is to educate others. Sunday-school teachers are volunteers; they are not likely to be professionally trained teachers or have degrees in special education or developmental psychology. If it looks like your child’s teacher doesn’t know what to do, it is probably because they really don’t. And this was the hard lesson for me- don’t take their lack of understanding personally. Be kind. Share. Offer encouragement.

Most of all, have hope. It does get better.

Why Do I Care?

If you have just stopped by or haven’t read my blog in a while you probably haven’t noticed that I have been on a mental health kick, spurred by the suicide of Rick Warren’s son. What I haven’t talked directly about, although I’ve hinted towards it in my last couple of posts, is why.

First I want to make clear that I’m not trying to take advantage of someone else’s personal tragedy to promote my point of view. Rather, I saw Matthew Warren’s suicide as an opportunity to complete posts that were already half-written and prayed that God could use this event to help others. I’m not alone in this. Adrian Warnock over at Patheos.com has been doing the same. I can’t speak for his motivations, but the way I look at it is if the son of one of the most recognized Christian pastors in America suffered from depression then that means the best-selling author struggled as a parent. And if he struggled, then chances are pretty good others are struggling as well. It would be easier for me to say that since I’m struggling then others probably are too, but that is a self-centered assumption. And although I want to relate and be as open and vulnerable as I can on an open forum such as this, I am very self-conscious not to make this about me.

So how did I get here?

My posts on counseling and depression were originally going to be part of a series of posts as I read through Sheila Walsh’s book, God Loves Broken People: And Those Who Think They’re Not. (Which won’t happen unfortunately, but if those posts resonated with you then I strongly recommend that book)

My post on suicide has been in the pressure cooker for some time, most recently following news of the spikes in military suicides.

And my most recent posts on Autism and ADHD obviously come about from personal experience, but also relate back to the post The Impossible Child over at The Psychotherapy Network. (If you didn’t get the hint in my last post I’ll say it again: if you’re a parent at your wits end YOU HAVE TO READ THIS POST!)

And as I’ve mentioned before, there are still a couple of posts to come.

So that explains the posts, but still doesn’t fully answer the question why I personally care. So deep breath, here I go.


 www.parentingwithhope.com


Yesterday I taught my son’s Sunday-school class. Things were going relatively well when we got to snack time and he started obsessing about a cup of water. I was just about to have him share with the rest of the class from his picture Bible but my wife and I could not bring him down off this obsession. It got so bad we had to remove him from the class. Once class ended and he settled down, it occurred to him that he never did get to share and that spun him up all over again. He calmed down by the time we got home, but the tension and anxiety was still under the surface. So we had another blow up as we were getting him ready for bed. This is just one example from one day.

My son doesn’t fit in any particular category, crossing and blending diagnoses, which makes accommodations extremely difficult. It is hard for him to feel loved and accepted. It is hard for us as parents to be patient and work with him. And my ongoing fear that does at times literally keep me up at night is that this pressure and anxiety will someday lead to something catastrophic.

The numbers don’t help. One article claims that 3.4 percent of the US population has Major Depressive Disorder (MDD) and 60 percent of suicide victims suffered from MDD. A study in the Archives for General Psychiatry found that 39 percent of children with ADHD suffered from depression and 18 percent had attempted suicide. Studies suggest that 30 percent of children with autism are also diagnosed with ADHD. Add to that the recent studies that show rates of autism and ADHD are increasing in children.

Link these all together and hopefully you understand how I can jump from depression and suicide in one post to autism and ADHD in the next and why I feel, as a parent, a blogger, and a Christian that I need to share for the sake of others who may feel the same. Yes, a percentage of a percent is a much smaller percent, but I still struggle with that fear. Maybe you do too.

I cannot change my son. I can only trust God and be as open as I can. And if only one person reads these words and finds comfort and hope in them, then this series of posts was worth it.

Not Autistic Enough

I have a new supervisor at work who calls all of us his Aspergers cats. I guess you could imagine a workplace environment full of Sheldons from Big Bang Theory. While I can see that in many of my coworkers I struggle to see that in myself. Yet I’m not very social, I can perseverate on subjects, I am borderline obsessive-compulsive in my habitual routines, and when things stray from my expectations my world is completely rocked.

These are things I have come to recognize as I’ve gotten older, but looking back I can now see some hints. According to my mom, when I was young parades would scare me- the loud noises would bring me to tears. I remember one Christmas receiving a fireman’s helmet, complete with a light and siren on top, that was the coolest thing in the world. That is, until I turned it on. When I got married, my wife and I lived in a little apartment. One day steam from the shower caused the smoke detector to go off which sent me into a panic attack. (Are you sensing a theme?)

I would consider my social skills and obsessive-compulsive behaviors to be personality quirks. But sensory overload- that I think is a real issue.

You’ll notice I didn’t mention the “A word” in last week’s post, God Made Me Broken [ed. note: this has been sitting in draft so long this used to read “yesterday’s post”- I apologize for the delay getting this out]. At the time we were dealing with my son’s speech issues we worried about how this would affect him socially. The “A word” was always in the back of our minds, with my wife being a special education teacher and me with my quirks. Yet my son would make eye contact and would respond to his name- traditional rule-of-thumb tests in a toddler or preschooler.

But… He had his struggles socially. He couldn’t understand why he couldn’t maintain relationships. He would find things to perseverate on. And he did not adjust well to change. (Sounds a lot like his father). But he managed for the most part. That is, until a little over a year ago…

We noticed at school he was getting into trouble more and his grades were starting to slip. It wasn’t long before it felt like he was tanking school completely. (And there were some environmental issues that contributed, but I won’t go there) Everything seemed consistent with that dreaded A word: Autism.

We went to our medical provider and had him checked out. To be diagnosed for autism, one needs to show deficiency in three areas: social, language, and play. To us, this was a no-brainer. I mentioned his language issues before. But I didn’t mention that as part of getting his IEP (Individualized Education Plan) for speech he was evaluated by a occupational therapist and we concluded that he had Sensory Integration Disorder. This explained why he didn’t like to swim, would only run if he could touch something next to him (a fence or a wall), why he needs his snuggles every night, why he freaks out when his sister orders mac and cheese at a restaurant, and also why he cannot sit still in a chair to save his life. (More on SID at the end of this post…) And his struggles in preschool and kindergarten appeared to be socially related.

In addition to these evaluations he also underwent a series of tests whose score would help determine where on the Autism Spectrum he would fall. My wife and I also had to fill out a form describing our impression of his behaviors and what stimuli would set him off.

When we returned to the pediatric psychologist to hear the results we were eager to finally have an explanation, that we could finally receive the help we needed, that prayerfully someone would finally understand.

But we were wrong. My son scored just short of the limits defined by the DSM-IV (Diagnostic and Statistical Manual of Mental Disorders) for autism. (Important note: soon the DSM-IV will be replaced by DSM-V which limits the range of the Autism Spectrum even further, which is subject to much debate.) And he showed that although he had struggles in language skills and sensory processing, he was not deficient socially.

So what was this? I wish I could’ve understood all the psychobabble as the psychologist spoke, but I was too much in shock. I heard Pervasive Developmental Disorder-Not Otherwise Specified (PDD-NOS, which is a fancy way of saying it looks a lot like autism but isn’t and we don’t know what to call it) and Juvenile Bipolar Disorder which can be confused with ADHD+ (not just ADHD, it’s ADHD Plus!). As he was speaking I was picturing my son, reviewing the tests in my mind, and trying to filter what the psychologist was saying through the definitions of autism as I understood them.

And a light went on.

I should note at this point that I am not a psychologist. I am not an expert in brain development or gene-mapping. In other words, I don’t really know what I’m talking about. But I do know what I’ve seen and it occurred to me that many of these diagnoses overlapped, which explains why autism is so difficult to identify and is often misdiagnosed. Remember the three areas that help define autism- social, language, and play? Imagine any two of the three overlapping: social and language for example and how those behaviors would be different than if language and play overlapped. And I saw a pattern in my head- ADHD, Bipolar, and Sensory Integration are each overlaps of two out of the three. Autism would be an overlap of all three. Again, I am not an expert and this certainly isn’t definitive, but it fit my son to a T.

And sure enough, there was something to this. A few months ago a study was released that claimed there was a genetic link between many of these mental disorders.

Vindication? I wish. My wife and I still joke about our son being “Not Autistic Enough” during good times, and we get discouraged when his teachers cannot understand him, or his diagnosis, during the bad times. We wish we could just slap a (relatively) well-understood label like autism to defend him. We’re still struggling through this and learning a lot. And yes, this means there is another post (or two) coming.

I mentioned I was going to revisit Sensory Integration Disorder. This was another revelation for us as parents. It explained so much and helped us immensely. A a parent, if you’ve never heard of this and cannot figure out what is wrong with your child, I’d recommend checking out The Out of Sync Child. I also recommend everyone read this article, The Impossible Child, from the Psychotherapy Network. It is long, but necessary to help understand what these kids and their parents fight through. To be perfectly honest, the first time I read this article I cried because that was me narrating. That was my son being described. Maybe it will also shed some light for you. And like I said, I still have a lot to say about this, so I encourage you to come back (and I promise it won’t be so long between posts this time!)